This month, HDBuzz is attending the first Huntington’s Disease (HD) Clinical Research Congress in Nashville, Tennessee, organized by the Huntington Study Group (HSG) and CHDI Foundation.
The conference brings together hundreds of scientists, doctors, and industry representatives to discuss HD clinical research and care, with Day 1 focusing on topics relevant to families.
The first session featured an interview-style panel with Arik Johnson, Chief Mission Officer at HDSA, Dr. Alexander Dalrymple, a neurologist at UVA, Dr. Daniel Claassen, CEO of HSG, and Frances Saldana, an HD advocate and President Emeritus of HDCare.
The panel aimed to explain elements of a study, such as protocols, endpoints, and the experience of participation, and what questions to ask.
Author's summary: Huntington's Disease Clinical Research Congress 2025 discusses HD clinical research and care.