Huntington’s Disease Clinical Research Congress 2025 – Day 1 – HDBuzz

Huntington’s Disease Clinical Research Congress 2025 – Day 1

This month, HDBuzz is attending the first Huntington’s Disease (HD) Clinical Research Congress in Nashville, Tennessee, organized by the Huntington Study Group (HSG) and CHDI Foundation.

Day 1: HD Community Research Day

The conference brings together hundreds of scientists, doctors, and industry representatives to discuss HD clinical research and care, with Day 1 focusing on topics relevant to families.

Demystifying Clinical Trials

The first session featured an interview-style panel with Arik Johnson, Chief Mission Officer at HDSA, Dr. Alexander Dalrymple, a neurologist at UVA, Dr. Daniel Claassen, CEO of HSG, and Frances Saldana, an HD advocate and President Emeritus of HDCare.

The panel aimed to explain elements of a study, such as protocols, endpoints, and the experience of participation, and what questions to ask.

Author's summary: Huntington's Disease Clinical Research Congress 2025 discusses HD clinical research and care.

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HDBuzz HDBuzz — 2025-10-14

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